A girl is called "Boris Johnson" because of her hair: only 100 people have this rare disease (photo)

A little girl has been nicknamed "fluffy" and "Boris Johnson" for her curly locks because she is one of 100 people in the world with "uncombable hair syndrome."

SSPDaily tells about it.

Three-year-old Layla Davis made headlines as a baby for her blonde curls that could not be combed. Layla was diagnosed with uncombed hair syndrome, a condition characterized by dry, frizzy hair that defies attempts to tame it.

The syndrome develops in childhood, often between the ages of birth and three, but can appear as early as 12 years old.

Children who develop the condition tend to have blond hair, like Layla, and there are only about 100 cases worldwide.

Charlotte Davis, 30, a mother of two, said that although Layla's hair has grown back a little, it has not improved over the past year.

The rare disease is fraught with difficulties. Caring for her can be a challenge, but people's reactions to her daughter's condition can also be difficult.

She said: "Her preschoolers call her 'fluffy' because of her hair, as there is another Layla in her class. The other children never react negatively to it, which means she is a very happy girl - she is not shy and talks to everyone. She cut her hair for the first time last February. Now we can braid it, but we don't do it too often because we don't want to pull it too hard - the hair is very fragile and can easily break. She has reached the age where she is starting to ask questions more, like she wants her hair braided every day and asks why we can't do it. I have to tell her that her hair is a little different and we need to take care of it."

The girl is also sometimes compared to Albert Einstein. Charlotte said that Layla's hair is mostly talked about by adults, and there have been a few instances where people have touched it without asking permission.

She explained: "People seem to think that you can reach out and touch her - I have to teach her about consent and it's hard to explain to a three-year-old why people would want to touch her hair. I also want to tell her that people cannot touch her without asking, but since she is only three, I don't want to scare her. People never mean anything bad, they just reach out and want to feel it."

Despite the occasional unwanted attention, Charlotte said Layla is a carefree little girl who loves to sing and dance ballet.

Charlotte set up an Instagram account for Layla called Laylas_Locks and said the support they have received has been overwhelming.

She said: "A lot of people have written to her from all over the world and thanks to Layla, they will now know that there is a name for their condition or that there is someone else out there."

The condition is also known as "glass hair" and usually improves over time - usually by adolescence.

"I hope that her hair doesn't change and gets a little longer so that one day we can put it in a ponytail. I just want her to like it because when she grows up, kids will suddenly start making comments. It's your job as a mom to prepare your kids for any situation, so I just hope she thinks it's cool, like I do," the woman added.